From the Primary Care Doctor 6-22-10
Hello -
Conversations with my regular doctor today were calming, but not informational. It seems that everyone is going to defer all guessing or speculation to the rheumatologist. It was good to talk to my doctor -she's really a good listener and takes a lot of good notes. However, she is really not clear on what is happening to me - just that it is awful, and she agrees that the neurologist giving me bad test results at 4:45 p.m. on a Friday was a major medical error. Unfortunately she doesn't know what kind of autoimmune disease process could be happening - she is leaving all that to the rheumatologist. But at least I am more calm now.....
And we'll know more evenually....probably on Friday, I hope so. Now I'm just tired - and I am focusing on preparing my house for company. My parents are coming to see me and I am thrilled. I can't wait to see them (even though I just saw them a couple weeks ago) - even a 30 year old needs her Mom and Dad! And I am excited to share my house with them - and it will be super ready for more visitors if more visitors want to come and see me!
I am loving the inspirational quotes and verses and prayers and sayings everyone is sending me....Lifelines, all of them...and I am going to make this tree - and already some suggestions for those have been coming in - so I am really excited to do that...thank you all for everything!
Remember silence = stigma....
love you all
Kate
Conversations with my regular doctor today were calming, but not informational. It seems that everyone is going to defer all guessing or speculation to the rheumatologist. It was good to talk to my doctor -she's really a good listener and takes a lot of good notes. However, she is really not clear on what is happening to me - just that it is awful, and she agrees that the neurologist giving me bad test results at 4:45 p.m. on a Friday was a major medical error. Unfortunately she doesn't know what kind of autoimmune disease process could be happening - she is leaving all that to the rheumatologist. But at least I am more calm now.....
And we'll know more evenually....probably on Friday, I hope so. Now I'm just tired - and I am focusing on preparing my house for company. My parents are coming to see me and I am thrilled. I can't wait to see them (even though I just saw them a couple weeks ago) - even a 30 year old needs her Mom and Dad! And I am excited to share my house with them - and it will be super ready for more visitors if more visitors want to come and see me!
I am loving the inspirational quotes and verses and prayers and sayings everyone is sending me....Lifelines, all of them...and I am going to make this tree - and already some suggestions for those have been coming in - so I am really excited to do that...thank you all for everything!
Remember silence = stigma....
love you all
Kate

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